We have sought out so many treatments, searched for any information. I have spent sleepless nights by his side praying he stays with me. Nothing is helping.
Braxton had an ear infection a few weeks ago. Something so common for normal babies, but the fever and infection set Braxton's seizures into high gear. He was prescribed the antibiotic amoxicillin, which fixed the ear infection, but the ten day dose dropped his seizure threshold, leading to even more seizure activity. (Research on antibiotics leading to increased seizures:
We took Braxton for blood work a few days ago, his seizure meds are in a normal range, but we are increasing phenobarb in an attempt to slow the seizures. We no longer think we can stop the seizures, and are reconsidering using steroids as treatment for his infantile spasms. We are currently also using medical marijuana and attempting to get to an ideal dose by slowly increasing the levels of high CBD oil every ten days. Hopefully we will get some relief once we get to a good daily dose. I also use frankincense essential oil for Braxton to smell to try to end seizures and topically as a preventative measure.
Really we will try anything to keep our baby safe from the harm of seizures. It's an evil that is around every corner, every stimulating situation can be the trigger, the big smile can spiral into spasming, turn your back for a second and he's on the ground tonic. Please let it stop.