Braxton's eyes are doing really good since the cataract surgery and he's opening them for longer periods of time. He has some sight, he can see lights and probably some colors, however his functional vision is minimal. We can only tell what he sees based on how he responds, and with his delays thats even harder. He's developmentally still a month old. Docs say it will probably take 2-4 years to know how much he can see and use his vision. So we now have to learn how to teach him about the world with sound and touch.
He still lacks head control and has delayed motor skills due to Dandy Walker malformation. However, physio, chiro and water therapy are helping, and he is starting to move his arms and fingers purposefully. We have started to use special medical equipment for him to stay in a sitting position so we can start feeding him pureed veggies/fruit. So far he's tried carrots, squash and pears.
Seizures are the biggest hurdle right now. Braxton has been diagnosed syptomatic epilepsy. Places with loud chaotic noice or too much stimulatoon, like when too many ppl are talking at once, often makes him either throw up or seize. But we are getting closer to controling the seizures with medicine. It is difficult since we have to be keeping watch 24/7 for seizures. He had gone ten days, but unfortunately had another cluster of episodes, and has now started a new type of seizure known as infantile spasms.
As I have said many times, Braxton is a fighter. He tries to trick doctors by pretending to sleep. He is growing steadily. We love him so much, and thank everyone who is walking this journey with us.