So after a short call to the pediatrician we headed to emergency. I tried to breast feed him once we were in a room in emergency, since it had been half a day since he had kept anything down, but it choked him and was going to lungs and they had to suction the milk back out of him. I can't describe the pain of hurting my baby so much from just trying to feed him. He was taken to trauma, however once stable admitted to a pediatric unit.
He was ordered nothing by mouth. For Friday night he just had an IV, which was good for nourishment but we couldn't administer his seizure medications. Saturday morning he had a tonic seizure and his infantile spasms were going crazy. We gave in and got him onto a feeding tube through nose to get milk/meds in him. I was really scared to start down the feeding tube route, I have worked so hard to get him nursing I would hate to loose that relationship. But once again I have to forget my ideals of what being a mom means and head on an uncertain journey, to do what is best for my little boy. Currently he is getting my milk though the tube, and I'm good at pumping, so we can do this.
Braxton had previously been scheduled to have a bunch of tests on Monday and Tuesday to try to sort out his seizures and feeding problems, and we are going ahead with those tomorrow morning. Thankfully Braxton's team is back tomorrow, so we will have staff that knows his history and we can hopefully start treatment. The unknown is the bad, but seeing my son upset and hurting, while we are helpless is the worst.
He is hooked up to all the monitors, but we are still cuddling as much as possible. He still has times where his oxygen dips dangerously low. Family are all coming to visit. I won't lie, I'm scared for Bubbe's future.