This is my growing list of websites, articles, and blogs that have helped me understand Braxton and given me insight as a special needs mom. (Also a helpful list when mom brain takes over and I need to reference something I have forgotten)
Dandy-Walker Syndrome and brain disorders
http://ghr.nlm.nih.gov/condition/dandy-walker-syndrome
http://kodysstory.wix.com/kody#!kodys-story/cjg9
http://www.youtube.com/watch?v=7cxtjxupdag&sns=em
http://www.nodcc.org/index.php?option=com_content&task=view&id=12&Itemid=27
http://specialchildren.about.com/od/dandywalkersyndrome/bb/dandywalkerresources.htm
http://www.fetalhydrocephalus.com/hydro/info-Congenital-Hydrocephalus.aspx
Epilepsy and Ketogenic Diet
www.epilepsy.ca/
http://www.emedicinehealth.com/seizures_in_children/article_em.htm#seizures_in_children_overview
http://www.epilepsyfoundation.org/aboutepilepsy/faq.cfm
http://www.webmd.boots.com/children/guide/parenting-child-epilepsy
http://www.epilepsyfoundation.org/livingwithepilepsy/parentsandcaregivers/parents/upload/Maternity-Anxiety.pdf
ketogenic diet
www.charliefoundation.org
www.mathewsfreinds.com
Products that Braxton can use now on the Ketogenic Diet
http://www.charliefoundation.org/resources-tools/resources-3/low-carb
Infantile spasms
http://www.mynchen.demon.co.uk/Epilepsy/Infantile_spasms/How_do_I_know.htm
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1464162/
https://www.epilepsy.org.uk/info/syndromes/west-syndrome-infantile-spasms
Vision Impairment
http://www.allaboutvision.com/conditions/congenital-cataracts.htm
http://www.nbcs.org.uk/ways-to-stimulate-a-baby-who-is-blind-or-visually-impaired
http://www.wonderbaby.org/articles/really-fun-toys-blind-toddlers
http://www.wonderbaby.org/articles/make-your-own-scented-rattle
Educational books (National federation for the blind)
https://ecommerce.nfb.org/asp/prodtype.asp?prod&ph&keywords&recor&SearchFor&PT_ID
Other families blogs:
http://thomasmarshalldoesitall.blogspot.ca/?m=1
http://www.turpinfamily.cc/2013/09/what-we-did-with-brother.html?m=1
Special Needs Parenting
http://www.articles.complexchild.com/aug2008/00057.html
http://blog.defyingdisabilities.org/
http://wrightslaw.com/
www.parentingspecialneeds.org
http://thetinylight.com/
http://www.starlightcanada.org/
www.rarediseasefoundation.org
http://www.madisonsfoundation.org/
www.zachslist.ca
http://www.andbabiesdontkeep.com/talking-to-kids-about-disability-and-he-who-must-not-be-named/
http://www.askdrsears.com/topics/health-concerns/fussy-baby/high-need-baby/parent-parent-20-survival-tips-parents-high-need-children
http://www.ncld.org/students-disabilities/accommodations-education/accommodations-vs-modifications-whats-difference
http://pediatrics.about.com/od/weeklyquestion/a/04_signs_autism.htm
http://kidcompanions.com/parenting-children-with-special-needs-feelings-of-isolation-grief-guilt-and-fear/#.Uu7Gr_ldWH9
http://www.thespeciallife.com/stress.html#axzz2rwa3xNyz
http://musingsofanaspie.com/2014/01/30/the-difference-between-a-sensory-sensitivity-and-disliking-something/
https://medium.com/@chase_reeves/36-things-to-do-for-those-in-grief-aa147d05fa4d
http://www.friendshipcircle.org/blog/2014/04/10/how-to-create-the-right-sensory-environment-for-a-good-nights-sleep/?utm_source=Friendship+Circle+Blog&utm_campaign=7bbc7b0ba9-RSS_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_3ec270b4ae-7bbc7b0ba9-199148209
http://zoobearsmedicalid.com/store/WsAddprod.asp
http://amomentcherished.blogspot.ca/2013/10/dear-special-needs-mom.html?m=1
Tube Feeding and Blendarized Diet
fluid requirements http://www.articles.complexchild.com/00037.html
http://www.benik.com/peds/wrap/g-tube
http://www.feedingtubeawareness.org/
http://www.tubiefriends.com/
Mom and Parenting Tips
http://kellymom.com/
http://m.today.com/moms/exhausted-new-moms-hilarious-take-expert-sleep-advice-goes-viral-6C9559908
http://teachmama.com/learning-during-read-alouds-5-things-never-to-say-to-emerging-readers/
http://www.savingaddiction.com/?p=28077
http://mylifeoutofbounds.wordpress.com/2012/01/04/25-rules-for-mothers-of-sons/
Dandy-Walker Syndrome and brain disorders
http://ghr.nlm.nih.gov/condition/dandy-walker-syndrome
http://kodysstory.wix.com/kody#!kodys-story/cjg9
http://www.youtube.com/watch?v=7cxtjxupdag&sns=em
http://www.nodcc.org/index.php?option=com_content&task=view&id=12&Itemid=27
http://specialchildren.about.com/od/dandywalkersyndrome/bb/dandywalkerresources.htm
http://www.fetalhydrocephalus.com/hydro/info-Congenital-Hydrocephalus.aspx
Epilepsy and Ketogenic Diet
www.epilepsy.ca/
http://www.emedicinehealth.com/seizures_in_children/article_em.htm#seizures_in_children_overview
http://www.epilepsyfoundation.org/aboutepilepsy/faq.cfm
http://www.webmd.boots.com/children/guide/parenting-child-epilepsy
http://www.epilepsyfoundation.org/livingwithepilepsy/parentsandcaregivers/parents/upload/Maternity-Anxiety.pdf
ketogenic diet
www.charliefoundation.org
www.mathewsfreinds.com
Products that Braxton can use now on the Ketogenic Diet
http://www.charliefoundation.org/resources-tools/resources-3/low-carb
Infantile spasms
http://www.mynchen.demon.co.uk/Epilepsy/Infantile_spasms/How_do_I_know.htm
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1464162/
https://www.epilepsy.org.uk/info/syndromes/west-syndrome-infantile-spasms
Vision Impairment
http://www.allaboutvision.com/conditions/congenital-cataracts.htm
http://www.nbcs.org.uk/ways-to-stimulate-a-baby-who-is-blind-or-visually-impaired
http://www.wonderbaby.org/articles/really-fun-toys-blind-toddlers
http://www.wonderbaby.org/articles/make-your-own-scented-rattle
Educational books (National federation for the blind)
https://ecommerce.nfb.org/asp/prodtype.asp?prod&ph&keywords&recor&SearchFor&PT_ID
Other families blogs:
http://thomasmarshalldoesitall.blogspot.ca/?m=1
http://www.turpinfamily.cc/2013/09/what-we-did-with-brother.html?m=1
Special Needs Parenting
http://www.articles.complexchild.com/aug2008/00057.html
http://blog.defyingdisabilities.org/
http://wrightslaw.com/
www.parentingspecialneeds.org
http://thetinylight.com/
http://www.starlightcanada.org/
www.rarediseasefoundation.org
http://www.madisonsfoundation.org/
www.zachslist.ca
http://www.andbabiesdontkeep.com/talking-to-kids-about-disability-and-he-who-must-not-be-named/
http://www.askdrsears.com/topics/health-concerns/fussy-baby/high-need-baby/parent-parent-20-survival-tips-parents-high-need-children
http://www.ncld.org/students-disabilities/accommodations-education/accommodations-vs-modifications-whats-difference
http://pediatrics.about.com/od/weeklyquestion/a/04_signs_autism.htm
http://kidcompanions.com/parenting-children-with-special-needs-feelings-of-isolation-grief-guilt-and-fear/#.Uu7Gr_ldWH9
http://www.thespeciallife.com/stress.html#axzz2rwa3xNyz
http://musingsofanaspie.com/2014/01/30/the-difference-between-a-sensory-sensitivity-and-disliking-something/
https://medium.com/@chase_reeves/36-things-to-do-for-those-in-grief-aa147d05fa4d
http://www.friendshipcircle.org/blog/2014/04/10/how-to-create-the-right-sensory-environment-for-a-good-nights-sleep/?utm_source=Friendship+Circle+Blog&utm_campaign=7bbc7b0ba9-RSS_EMAIL_CAMPAIGN&utm_medium=email&utm_term=0_3ec270b4ae-7bbc7b0ba9-199148209
http://zoobearsmedicalid.com/store/WsAddprod.asp
http://amomentcherished.blogspot.ca/2013/10/dear-special-needs-mom.html?m=1
Tube Feeding and Blendarized Diet
fluid requirements http://www.articles.complexchild.com/00037.html
http://www.benik.com/peds/wrap/g-tube
http://www.feedingtubeawareness.org/
http://www.tubiefriends.com/
Mom and Parenting Tips
http://kellymom.com/
http://m.today.com/moms/exhausted-new-moms-hilarious-take-expert-sleep-advice-goes-viral-6C9559908
http://teachmama.com/learning-during-read-alouds-5-things-never-to-say-to-emerging-readers/
http://www.savingaddiction.com/?p=28077
http://mylifeoutofbounds.wordpress.com/2012/01/04/25-rules-for-mothers-of-sons/